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I have never been one to look for "silver linings" in terrible events. Far too cynical and pessimistic by nature for that. However, dealing with this diagnosis has resulted in a major rearrangement of priorities in my life, and that has been a good thing.
I hope that other members who have dealt with trachea issues will touch base to share experiences with you. I understand that it can be a difficult and often recurring problem.
No doubt you have already looked at various resources on the web. The Vasculitis Foundation has a series of videos on YouTube that I found quite helpful. There is also a free book with basic information from VF that you can order by emailing Joyce Kullman with VF.
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I'm wishingyou all the best for feeling much better soon. Welcome to the best group ever, somebody is usually always here to answer any questions you might have. Take good care of youself!
Jana
Do not fear anything, just do it afraid!
It does not matter how slowly you go, as long as you do not stop!
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