Hi Hazel,
Rtx usually takes several weeks until the full main effect kicks in. My labs showed improvement about six weeks after treatment. Your side effects are similar to mine, and the slight fatigue hasn't kept me from doing anything I really needed to do.
I have not been able to get off pred. I was off it for about four months, and then symptoms would reappear. The last time I tried to taper, I was at 3 mg/day and started having symptoms again. I went back up to 5 mg/day and have stayed there for the past 2+ years.
For the next couple of months, you should really try to avoid sick people. Also, practice good hand hygiene. This is your time of maximum immunosupression.
Last edited by Pete; 11-20-2016 at 01:09 AM.
Pete
dx 1/11
"Every day is a good day. Some are better than others." - unknown
"Take your meds as directed and live your life as fully as you can." - Michael Chacey, MD
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