Hi janish, your situation was very similar to mine. Tremendous ear pain and pressure, then ear tubes that revealed tremendous amounts of ear drainage. It took me 3 months and blood tests revealed high sed rate, c-rp and rheumatoid factor. That led to a positive ANCA test and lung biopsy. That was the first week of Aug that I got dx. Feels like a year ago. I'm in NH. Not far from you - well not worlds away.
I'm on prednisone (60 mg at first, tapered to 30 now) and Rituxan infusions. My ear pair and drainage went away but I think I feel a little "activity" in my ears still. Everyone is different but I have shortness of breath when I exert myself at all. My treatment has proven very successful so the symptoms may be from the prednisone. I'm very new to this dx like you but there are many here in this forum with many years of experience. I'm sure they will chime in. In the meantime try to keep away from sick people. Are you on Prilosec to protect your stomach and calcium/with d to protect your bones (prednisone comes with side effects ).
Do you have a rheumatologist experienced with GPA? Have you had your lungs and kidneys ct scanned for disease? These are typical areas checked for GPA dx.
Welcome to the forum. Sorry you have this disease!!!
Wishing you the best!!
Gab
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