Hi Jane! Welcome. In glad that you found us. Everyone has had great advice. My husband had required aggressive treatment to keep his WG in check. The best thing to do is to get a doctor who has treated the disease. In my experience, it is not enough to know about the disease. They need the experience of treating it. That doctor should have other experts that they feel comfortable working with, such as ENTs, etc.

Are you on an acid reducer? How about bactrum?

The biggest thing to remember is that you are immune compromised. Be exceptionally cautious about germs. Wash your hands - often. Do not touch your face. The best method I use is to immediately wash my hands when I get to my house. My family does the same.

Keep your appointments. Keep track of the symptoms. Have someone be your advocate. You're the patient. Sometimes you need someone to advocate for you - especially when you don't feel well.

Let me know if I can help in any way!!

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