Hi, Since I have been diagnosed with WG- limited, I have seen the doctor once and am to return soon. The last time I asked her about repeating the WG markers and she said that she would not do that. She will monitor me by how I feel- me telling her any aches pains etc., side effects to the medication and we will adjust the medication or change if needed. She did do blood work for CBC and CMP. I am on 75mg of Imuran. Is this the best way from what other doctors do? I am in a large university setting and feel I am getting good care. Other than hair thinning on the Imuran, and some joint pain I am doing ok. Am on Folic Acid for the hair but not doing a great job, can only imaging what it would be like it I wasn't on it. Thank goodness for hair products!
On another note, I have had hearing issues since before I was diagnosed and no one was sure what was going on. Had tube place and still in but hearing never improved. It might be out now. The ENT is finally convinced it is the WG was on steriods but did not help. Nor has the Imuran. Will this be a problem I will have to live with forever? The ENT, who is Chair of the department is baffled on what to do. What have other WG done about the ear issues?
thanks for any help
deanna