Well, just received news that my nasal biospy was benign. Non specific to Wegeners. The last piece of the puzzle doesn't fit. I have a positive c-anca, sed rate is sky high, rheumatory fator and I have an antibody present in my blood that incidates an active vasculitis and I have a saddle nose deformity. So I have my appt with Dr. Antoine Sreih at the University of PENN on June 17 and all my bloodwork is being sent to him along with my biospy results. I hope he can help me and maybe I can get my appt bumped up after he looks at everything. Has anyone ever experienced a negative biospy and still had WG or maybe it could be something else? Another vasculitis?

Thanks,
Michelle