Quote Originally Posted by annekat View Post
What everyone says is right, but I was lucky enough to get a positive result on my nasal biopsy. So I think they are worth doing, especially if that is your only obvious area of involvement. If mine had been negative, they could have done a lung biopsy, which is a much bigger deal, and I'm glad to have been spared that. Of course, I had a saddle nose, too, so they could have just concluded by that and my other symptoms, plus the result of my lung CT scan, that I had WG. But I was not being seen by any real WG specialists; when you go to Penn, the one you will see will probably be able to come to that conclusion. Not that I want you to ohave WG, but if you do, I'd like you to know and be able to get treated ASAP. I'm sorry you have to wait until June 17th. It would be nice if someone could at least prescribe you some prednisone in the meantime. Best of luck!

Hi Anne, I really praying that they can diagnose me without the biospy. June 17 seems so far away and I'm concerned with this recent symptom of numbness in my right foot/ankle. Been numb for a week and to me anything numb on your body probably isn't good. All of my bloodwork has been sent to Dr. Sreih so maybe he will review it soon and call me in earlier. I have been on 10mg of prednisone since April 12 and that has help so much with the leg & joint pains.