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hi
its been a few years since I've been here. Was sick off and on and had trouble keeping up with everyone. I truly appreciate the support and info I got at the time.

i have not been diagnosed with wegner's but with an undifferentiated immune disorder.
because I do not test positive, i have all the symptoms and many complications. My c r protein for the past 8 months has ranged between 18-25. I have been taken off 100 mg of my 200 imuran and all of the plaque nil. They plan to take me off the rest of the imuran in a few weeks. Am being referred to a local rheum doc. John Hopkins does not take my insurance. I am being treated by a teaching hospital, UVA. Am back on pain pills and the ulcer in my perforated septum is active again and slowly eating away the cartiledge. My kidneys are deteriorating again and my lungs are shot. Thank God that my pulmonologist has me on 25 mg of prednisone daily or I don't know how I would get around, get anything done or stand the pain.

i got my 2nd nasal biopsy of the month today. My ENT is really concerned.

I I am doing what I can but could sure use some earnest prayers.

Hope