I have yet to be diagnosed with GPA however several doctors now suspect after a sinus infection that won't go away (4 months now) with the standard treatment of antibiotics and looking at my nose and sinuses the left side only (right side is ok) looks very inflamed. I have some conductive hearing loss on the left side as well. Given this, my ENT specialist sent me off for blood tests and a chest CT. The blood tests showed nothing remarkable except slightly elevated white blood cells (neutrophils) and a raised CRP. The chest CT showed 4 small (4 to 10mm) nodules on my left upper lobe of my lung. My ANCA's (repeated twice) are negative. All my kidney and liver functionality is fine and have no other signs or symptoms. Ive been put on 25mg of prednisone since however my ENT wants to start weaning me off the pred for some reason!?

I wanted to hear from people familiar with this disease what their thoughts are on whether it sounds like Weg's or possibly something else? Has anyone else only had it on one side of the body?

One of the Drs wants to repeat the chest CT to see if the nodules have resolved or not. If they haven't he is looking at possibly getting a biopsy to confirm once and for all.

I very much look forward in hearing from you all.