Hi From Oz

[Mark76]

Does anyone know if they are any closer to a cure for this dsease? I know Mayo clinic etc are doing continual research but would be interesting to see if they are making inroads

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[Dirty Don]

No real cures yet...just newer protocols at this point. Protocol seems to be the best bet...keep at it no matter which drugs they give you...give them time to work & condition your responses to the disease. Wish there was a cure, but wishing gets us nowhere...

[Mark76]

Ok what about swollen lymph glands? Ive got swollen lymph glands on the left side where my wegeners is behind my ear. Ive just started treatment so im hoping it will go down before too long. Just curious if anyone else had swollen lymph glands though

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[debra]

Hello, Mark! That would be a yes for me, though I'm not sure why, as of yet! May hopefully know more after next week, as I have an appointment the end of the week... This has been just another mystery that came on, with all the rest of the crap. If I find out, I'll give ya a heads up, who knows, could be something more simplistic, like the thyroid? Debra...

[annekat]

Ok what about swollen lymph glands? Ive got swollen lymph glands on the left side where my wegeners is behind my ear. Ive just started treatment so im hoping it will go down before too long. Just curious if anyone else had swollen lymph glands though

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I know I had a swollen parotid gland, which is sort of in front of the ear, near some of the lymphs.... My ENT got a successfully positive WG sample from my nose and the parotid gland, too..... Soon after initial treatment, the gland went down immediately... I think the parotid has something to do with salivation, I'm not sure, but I had no issues with that, it was just a lump and needed to be biopsied while we were there, to make sure it wasn't cancerous or something... The procedure with lymph glands might be different.

[Mark76]

Yeah not sure if lymph or parotid...hoping it goes down soon

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[debra]

Anne, interesting... Mark, even the common cold could be a cause. In my case, I have autoimmune hashimoto thyroiditis, so was thinking it may be this, as its pretty common with this... Sounds like the number five dinner at the local Chinese food take out, doesn't it? Debra...

[annekat]

Yeah not sure if lymph or parotid...hoping it goes down soon

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If it's behind your ear, I'd say lymph, but I'm no expert. Your doc should be able to shed some light on it.

[Mark76]

Immunologist isnt too concerned he said its reactionary to the wg sinus inflammation and should subside

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[annekat]

Immunologist isnt too concerned he said its reactionary to the wg sinus inflammation and should subside

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Sounds reasonable to me....