Greetings all ,
I have stopped taking steroids for the first time in two years after several reductions and finally a taper down to zero.
My symptoms on a regular basis are a very long list and my WG's is very active as I can't seem to get into full remission
but as of thanksgiving weekend I have stopped taking steroids due to severe edema in my legs and feet(yes they checked my heart).
My question is other than all my standard symptoms going haywire I am experiencing a very down mood and sleepless nights along with a feeling of apprehension at night or when it is dark outside. I live alone and my family is one of those who don't really think that I am sick. I told them that human connections and even a phone call would help as this seems to reduce the symptoms. Has anyone else experienced this?

Thanks again friends,
James
PS. My symptoms and conditions are listed in a post titled "Vertigo Anyone"