User Tag List

Likes Likes:  0
Results 1 to 10 of 10

Thread: Who can recommend the best wegs doctor to see in australia.

  1. #1
    Join Date
    May 2013
    Location
    Australia- Northern N.S.W
    Posts
    171
    Post Thanks / Like
    Mentioned
    1 Post(s)
    Tagged
    0 Thread(s)

    Default Who can recommend the best wegs doctor to see in australia.

    I looking for a good Doctor, with Wegs experience, in Australia, for a second opinion, I am willing to travel anywhere in Australia to find such a Doctor, all my blood tests have been good, but my PR3, which was once in the negative level (<2.0 Iu/ml) Oct 2013 has risen to around 12 IU/ml April 2014, and has been anywhere from 8 IU/ml to 15 IU/ml since then, I have maxed out my aza to be on 300mg per day, have even tried a little pred 5mg for 2 months to see if that would bring it down, but my reumy is stumped, and that's why I am looking for a second opinion. I have been in good health, working full time, and besides aches and pains and fatigue, feel reasonable well.

    Thanks Woz...

  2. #2
    Join Date
    May 2008
    Location
    Canberra, Australia
    Posts
    1,578
    Post Thanks / Like
    Mentioned
    35 Post(s)
    Tagged
    2 Thread(s)

    Default

    I see an awesome doc at RPA in Sydney: Professor Stephen Adelstein. Top notch bloke. Several in Sydney are great too. Where are you located?
    Forum Administrator
    Diagnosed March 2003.
    Currently but not permanetly residing in Canberra, Australia.

  3. #3
    Join Date
    May 2013
    Location
    Australia- Northern N.S.W
    Posts
    171
    Post Thanks / Like
    Mentioned
    1 Post(s)
    Tagged
    0 Thread(s)

    Default

    Many thanks Andrew, I live in northern N.S.W. half an hour inland from Byron Bay, 1 hours from QLD border, a plane takes about 1 hour 40 mins from Ballina airport, to get to Sydney airport, I will definitely look him up.

    Regards Woz....

  4. #4
    Join Date
    Nov 2010
    Location
    newcastle Australia
    Posts
    18
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Default

    Sorry that you are struggling with the disease again. Are any other markers up?
    I'm saying this as my PR3 is now 45 but no other markers are up. I have recently seen my specialist and he is not too concerned, just wants to watch and wait.
    As for another specialist I have a few friends with WG who see Dr G Majors at the John Hunter Hospital and Newcastle

  5. #5
    Join Date
    May 2013
    Location
    Australia- Northern N.S.W
    Posts
    171
    Post Thanks / Like
    Mentioned
    1 Post(s)
    Tagged
    0 Thread(s)

    Default

    Thanks for the info jeniban, all my markers have been great , except for my PR3, which seems to hover around 8 to 15, my reumy isn't too worried, she wants to watch and wait, when first diagnosed my PR3 was 60, I would like to get it back to under 2.0 Iu/ml, if possible, but maybe this is as good as it gets, time will tell.

    Regards Woz....

  6. #6
    Join Date
    Nov 2010
    Location
    newcastle Australia
    Posts
    18
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Default

    Feel free to come to our Aussie Facebook site. Loads of great people.

  7. #7
    Join Date
    May 2013
    Location
    Australia- Northern N.S.W
    Posts
    171
    Post Thanks / Like
    Mentioned
    1 Post(s)
    Tagged
    0 Thread(s)

    Default

    Thanks for the offer Jeniban, but I'm not a facebook person, I have a facebook page (4 friends and thats my wife and 3 kids) but the last time I checked was a couple of years ago.

    Regards Woz.....

  8. #8
    Join Date
    Dec 2010
    Location
    Melbourne, Australia
    Posts
    2,751
    Post Thanks / Like
    Mentioned
    12 Post(s)
    Tagged
    0 Thread(s)

    Default

    Jen, Woz did join the Aussie WG facebook group, but as he said, he is never on

    Woz, is Gold Coast closer for you? The Gold Coast University Hospital

    Dr Hanish Bagga at Coffs

    There is also Dr James Mackie at the Prince of Wales Hospital in Sydney


    I hope some of these help
    Keep Smiling
    Michelle


    Live your life in a way that you wouldn't be ashamed to sell the family parrot to the town gossip - WILL ROGERS

  9. #9
    Join Date
    May 2013
    Location
    Australia- Northern N.S.W
    Posts
    171
    Post Thanks / Like
    Mentioned
    1 Post(s)
    Tagged
    0 Thread(s)

    Default

    Thanks for the Info Michelle, I hope you are well, and the weather in Melbourne isn't too dreary,
    I was actually born in Warrnambool, and now live half an hours drive from Byron Bay.

    Regards Woz....

  10. #10
    Join Date
    Dec 2010
    Location
    Melbourne, Australia
    Posts
    2,751
    Post Thanks / Like
    Mentioned
    12 Post(s)
    Tagged
    0 Thread(s)

    Default

    Thanks Woz, Melbourne is freezing and wet

    My grandparents came from down Warrnambool way and my brother in law and his family still live there.

    I don't know Byron at all, I have only driven through.

    I hope you can find a specialist that can help.
    Keep Smiling
    Michelle


    Live your life in a way that you wouldn't be ashamed to sell the family parrot to the town gossip - WILL ROGERS

Bookmarks

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •