Quote Originally Posted by annekat View Post
I agree. My ENT has to be prodded to send reports to my WG doc and my primary care provider. Then I end up having to tell the WG doc what the ENT said. This annoys me, as I don't think it is my job. Finding a team that works together is more likely at a well-known facility that has a competent rheumatology and vasculitis clinic along with the related specialties for the areas that affect us. I feel the need myself to find something like this.
While having all our docs in the same place and on the same page is ideal, it's not reality - yet. My PCP in Columbus orders and reports my monthly labs. My rheumy at Cleveland Clinic needs to see them too. To make sure she does, I update a MS Excel spreadsheet and send a copy to her (by snail mail now - until Cleveland Clinic's MyChart system will allow me to include them in an e-mail).