Thank you all for your notes of support!! My moms Drs are really fantastic. I do feel blessed to have them. We are exclusively working with specialists. But I feel like the disease is not cooperating. The nerve test came back with "significant damage". Which means that the disease is progressing. But somehow no kidney results yet!
We've been given two options right now, biopsy the nerve and see just how bad damage is and confirm the diagnosis OR just go ahead and blast it with Rituxan. I'm leaning toward just blasting it before the damage progresses further in the nerves. I'm so bummed about this news. We were hoping that the nerves could get better. I haven't even told my mum that they will likely stay that way. I don't want her to get depressed about it.
Has anyone had something similar with the leg nerves?? This is a crazy disease!
Thanks everyone!
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