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Keep a diary
In retrospect I wish I had kept a diary of what was happening, the dates and the drugs etc I was given. If you are newly diagnosed then I suggest you do this - because you are so sick your memory is not so good so it's good if it's written down. I suggest that if you have a partner then it is useful for them to be at appointments to begin with - you often hear different things from the Doc and it helps your partner to understand it all.
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