Hi Savedbygrace,
In addition to the link Anne gave you, the Vasculitis Foundation's website has a list of specialists who will consult with your local doc.
Cleveland Clinic has a facility in Tampa. If you only needed to go there a couple times a year, it might be worth the trip. I live a little over two hours drive from Cleveland Clinic's home base. I see my doc there twice a year.
Pete
dx 1/11
"Every day is a good day. Some are better than others." - unknown
"Take your meds as directed and live your life as fully as you can." - Michael Chacey, MD
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