Update: Saw the doc this morning!

[NikkiNicole]

Soooooo, I went down to see my doctor today. I left at 7:10 for a 9:50 appointment. Why so early? Well, traffic on the 101 headed SB in the mornings can be awful!!!! I got to the office at 9:00!!! It wasn't pretty. I just hunkered down in the office with my Kindle and waited.
OK, to sum up: No Rituxan right now. I am not in any life threatening danger so the risks of the meds outweigh any potential benefits. After we talked some more, I understood. I am going to be trying Imuran instead. First, I did some blood work to see if I will tolerate the Imuran. If I can't ... then we look into Cellcept. If those aren't options, well ... then we talk again.
There could be a number of things happening to me:
1- side effects from MTX
2 - Wegener's still being an active pain in the you-know-what
3 - fibromyalgia
4 - working too much on top of everything else.

So, doing my part I will be cutting back on the late hours. It's a step in the right direction because I don't notice being tired on my dayshifts, etc. I am also focusing on extra sleep!! I will definitely be focusing on those things. I'll be trying to put myself first.

This is day 2 of The Whole 30 and I am enjoying it because I love all natural foods anyway. I am certain the sugar withdrawals will start soon. I will power through.

I am feeling positive that I will start to feel better. At least, I am trying. I'm so tired and wished that I stayed home. On a brighter note, I didn't take my MTX this week so I am going to have some ibuprofen to get rid of this damn headache!

Hope you are all well!

[Debbie C]

Well all n all that is good news Nikki. If you don't need the rtx why take it. And no more mtx !!! when well they let you know about the imuran or cellcept ?
And ITS ABOUT TIME you start putting yourself first..I am sure everything that you are going to do combined will make you start to fell better...I hope so.

[drz]

I had good luck with Imuran but had to start with very low dosage and slowly work up to a therapeutic level. That way I had very few bad side effects. I think they were very careful with me since it was the only good option left for me due to kidney and lung damage. I sure hope it helps you too. I think the cut back in hours and getting more rest will also be a big help to you and the diet might also prove beneficial if it does stress you out at all. Best wishes for better health.

[me2]

It sounds like a good well rounded plan.

[Pete]

Sounds better. Hope you get some relief. More sleep coupled with a healthy diet should help.��

[mrtmeo]

Finally, some options.
I pray you feel better soon.

[LisaMac]

I'm new here so you don't know me, but my heart is breaking for you. I wish you could rest your body more and have less pain. My best to you, new friend.

[NikkiNicole]

Thanks LisaMac! Welcome to our forum. I've read your stories and I have been too stunned to speak. I hope that you are in a good place right now. I will get there. The things I have to deal with pale in comparison to others struggles. It's hard to whine right now when my dear friend is about to start chemo for very aggressive cervical cancer. A cancer that if they checked only a week or so later, she wouldn't be able to fight back against. It really shut me up as far as whining goes.

Don't get me wrong, I still whine ... I just realize that my problems are manageable right now. Things could be much worse.

[LisaMac]

So true, friend. There is always someone sicker than ourselves. I do find helping others gets my eyes off of my woes. I'm sorry for your friend and hope she gets better.

[NikkiNicole]

We all have our own battles though. SO glad you are here with us to share and help others. We can always use another set of ears for our troubles. Big hugs to you!