Bowel or colon problems/how to dx its wg related.

[im so blessed]

I guess my question is that simple. How do you find out if issues you are having with bowels could be wegeners. I have a spot that is very tender and can be extremely painful...but comes and goes alot. I mentioned it to the dr 6 months ago and she said no wegs does not move to the colon...but i think some of you have had it. Just wondering which tests can confirm that. Thankyou so much.

[Alysia]

I have colon involvement. Diarhea,pains, weight loss. I cant eat many things. I have couple of weggies friends on facebook with colon involvement although it is rare. I did calprotectin test who was positive for IBD means bowel disease. Experinced gasto said it is wg. I didnt do colonscopy. Too weak for it. Gastro doc said there can be granulomas in the colon, which btw can look the same as crohn. High pred help when its severe. Rtx also made it much better. Still my diet is strict. Good for the figure.

[mrtmeo]

My mom has MPA and the colonoscopy showed surface blood vessels that were probably bleeding for months until she became too anemic.
I do think there is intestinal involvement but they would not check it.

[im so blessed]

Thankyou both. I wondered if a colonoscopy would point to wgs.

[mrtmeo]

An EGD and colonoscopy might show vasculitis, but it can also, be in the intestines.
I don't the name of the test for checking the intestines.
They can also, do a test for blood clots which can happen to the small blood vessels of the intestines.

[Alysia]

colonscopy can be risky, be careful about preparation and the stuff they give for "cleaninng" the colon. read this for example:http://www.wegeners-granulomatosis.c...ncy-rooms.html
also, both the gastro doc and the pathologist should be very experienced and to know what they are looking for, means granulomas.
you can first try this test to see if you have an inflamation in the colon: Calprotectin: The Test

[mrtmeo]

colonscopy can be risky, be careful about preparation and the stuff they give for "cleaninng" the colon. read this for example:http://www.wegeners-granulomatosis.c...ncy-rooms.html
also, both the gastro doc and the pathologist should be very experienced and to know what they are looking for, means granulomas.
you can first try this test to see if you have an inflamation in the colon: Calprotectin: The Test

Yes, the colonoscopy is extremely risky.
My mom was given a virus, maybe the rotovirus, from the colonoscopy.
She had projectile vomiting for 3 days and constant diarrhea for 5 days.
This happened right after the scope and she was not on any immune suppressants.

[mrtmeo]

I found this clinical case where a renal transplant patient was on Mofetil and had severe diarrhea even after stopping.
They found she had Mofetil - induced ulcerative colitis and used infliximab to stop it.
However, vasculitis can and does affect the GI tract, but few know this.

Rapid resolution of persistent mycophenolate mofetil-induced diarrhoea with a single dose of infliximab