Hi, I was diagnosed with Wegeners in January 2011 aged 58 and have been on remission for the past six months and finally off steriods but still on azathioprine.
I am aware that according to medics there is no proof of what causes Wegeners but I have suspicions of my own as to a possible link to what could cause Wegeners.
My suspicion is contaminated water.
Let me explain my reasons to link this to Wegeners!
I understand that most houses built pre 1960 in Scotland had lead pipes for the water supply and before I moved to my present house 15 years ago my two previous houses had lead water pipes. So for 43 years I believe I have been drinking lead contaminated water.
What brought this to my attention is I met up with my old neighbour who lived next to me for 40 years and guess what he was diagnosed with three years ago? Yes Wegeners Granulomatosis!
Is that a coincidence or what?
Not as far as I'm concerned I'm afraid.
My consultant informed me Wegeners affects 1 in 30,000!
So for two people living next to each other for 40 years and drinking the same water supply to be diagnosed is beyond coincidence I think!
I would be interested in any thoughts on this subject!

Cheers
Chas