Hello KD,
Glad you found us, but sorry you needed to. This is good place to get information and support from a great group of folks (most of whom I've never met face to face). Someone is on here 24/7/365. Feel free to ask questions, get advice, or just vent. There are also Vasculitis support groups in Cleveland and Springfield. If you need contact info, just let me know.
I live on the west side of Columbus and was diagnosed at Ohio State. A little over a year after diagnosis, I found this forum. Most everyone was recommending that I connect with a Wegener's specialist. I now see Dr Alexandra Villa Forte at Cleveland Clinic. She only sees Vasculitis patients. She's very competent, very thorough, and a nice person. She takes the time needed to address your concerns. I see her twice a year. It's a little over two hours each way to get there. I also have a really good PCP at one of the Ohio State satellite offices near my home.
Where do you live in Ohio? I'm originally from Massillon, but I've lived in the Columbus area for the past four years.
Good luck, and I hope you feel better soon.
Pete
dx 1/11
"Every day is a good day. Some are better than others." - unknown
"Take your meds as directed and live your life as fully as you can." - Michael Chacey, MD
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