Hi Guys,

Its been 4 months since posted. After getting the Diagnoses of pauci-immune crescentic glomerulonephritis in July I have had more drugs than I care to know.

I have had 4 x Cyclo IV, Mychophenolate, Meth Pred, Oral Pred, Bactrim, Somac etc.

Yet my CRP remains at 120 and my Polyarthritis remains almost unwalkable.

My kidney numbers are better but still smoldering with blood in the urine.

My specialists are not sure what to do. After doing some research and literally having enough of my body being torn to pieces with drugs, I have had clearance and support from the hospital to do a Fecal Transplant. This will be first in the world for Vasculitis on the 2nd of December, no evidnece, but either is trial 5 drugs at once when they barley work on their on which one dr suggested.

I have decided to put my life on the line in aid of research and if the roll of the dice pays off, a case study on pubmed that might help others. There comes a time after 5 grueling years that you say lets have the courage to try something different and not let this thing keep on taking your fighting spirit.

http://www.nytimes.com/2012/10/28/ma...anted=all&_r=0

So I will keep you posted. I am in Aus and its been great to get support from Andrew. God bless that man for putting this entire forum together after what he went through.

C