Hi
I'm from australia. A grandmother. Was diagnosed in March after a few months of severe migraine like headaches, aura-like (Northern lights ) visual disturbances many times a day and fatigue. Lucky for me my doctor didn't assume, as I did because I've suffered from migraines before, that the fatigue was related to the headaches. He kept ordering tests till he found something- inflammation, anaemia and finally the high ANCA marker. I had a kidney biopsy and I have kidney involvement but lucky for me it was all detected early and so far no permanent damage to the kidneys, just leaking protein. I had been on drugs for thyrotoxicosis for 5 or so years. (propythouricil PTU - probably I've spelt it wrong). Kidney doctor and rheumatologist believed this was the likely cause of the wegeners, tho the thyroid doctor says he's never come across it.
Anyway, I was pretty happy about that because if it was drug induced it would go away when I stopped taking the drug. I've been improving over the past 6 months with immune suppressant drugs. But I'm sorry to say that I think I'm having a flare. I've been off the thyroid drug for 4 months so I can only assume that wasn't the cause. Due to see docs again inDecember.
So, my question is - are forum members familiar drug induced wegeners? Does anyone have info or insights? Best wishes to you all.
Bookmarks