Hi hi...
Just had my quarterly Immunologist appointment. The results:

  • BP is actually LOW for the first time in my life (104/80).
  • Creatinine is 116 which is normal for me
  • Other bloods are in normal range....for me
  • I'm being booked in for a lung function test


I explained how I can't get a lungfull of air when I exercise or walk up several flights of stairs. This isn't normal 'running out of breath', it's something else. It's like one of my lungs is taken away and I have to try and survive on one. It's quite scary actually when it gets severe. I'm calling to book the test tomorrow. They should be able to fit me in in about two or three weeks.

I'm staggered about my BP being low. I reckon his machine was broken I have my own so I'm going to keep an eye on it myself. If it continues to be low then he's going to adjust my BP meds a bit.

My ANCA level wasn't in. it takes about a week and I only got my bloods done on Monday. What can I say? I'm disorganised

Other than that, I'm fit and healthy and will live until I'm 100 at least. I hope I do. Maybe that'll give me enough time to do all the things I want to do!