Although I am a new member to this site I have had WG for 20 years now and have had flares off and on throughout the years. Right now I am taking the shot form of Methotrexate and 20 mg prednisone while also doing Rituxan every 6 months. I have had a few nodules appear in the lungs but it is manageable and somewhat quiet. Issue is that there was scar tissue closing off the left main bronchial airway. Doctors decided to do a stent to open it up. BAD IDEA. The stent is embedded and cannot be removed and was placed in me 17 months ago. I have had 19 bronchoscopies to open up the stent that is now closing off with scar tissue and lazering other areas within the airway that are now forming scar tissue as well. These surgeries occur about 6-8 weeks apart and have had me have a collapsed lung twice. The doctors do not offer any solutions and I am soooooo sick of constant surgeries. Has anyone else had this issue and if not what can I do to slow the scar tissue from forming? Is this a WG issue? Do I need to change meds? I am so lost as what to do to end this nightmare. Thanks for your help. Velma.
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