Less Severe = Shorter Remissions

[Psyborg]

Wonder if this has anything to do with how agressively it's first treated. My symptoms are definitely less severe than a lot of wegs patients and they're not treating it very aggressively. I've wondered if this is a mistake and will make things worse in the years to come...

I was treated fairly aggressively, so I really don't think that is it. I couldn't begin to speculate why though.

As far as the Renal failure, I'm going on 4 years now with no sign of any Kidney issues at all. My flares have all been pretty quickly treated though. I have to say I just wish they'd stop so I could stay at least on a low dose of Prednisone for a while.

[Alias]

I'm told that in cases of "limited" GPA, flares are mostly limited to the original site(s) of trouble, e.g. nose and ears, and usually respond well to the original treatment. This is one of those disorders where the treatment can be worse than the disease, so the trick for you and your docs is to strike the right balance.

[mrtmeo]

Hi Bob,
What was your creatinine when your kidneys were at their worst?
What is your creatinine now?