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  1. #1
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    Quote Originally Posted by annekat View Post
    Alysia, I agree with Lisa entirely. Those friends on Facebook may mean well, but it is really not up to them to judge what pictures of Phil you should post. You are sweet to consider their feelings, but yours are more important in this situation. If you continue not to post them on Facebook, at least we here can still see them. I enjoyed looking at all of them today. He always has that pink phone in his hand. Is that your phone? Just curious.
    thanks Anne, please also read what I just wrote above.
    its his mother phone. day before I was back to Israel they bought him a cell phone of his own so that we can keep in touch untill I will be back, because his mom needed her.
    The next picture - after I posted it - I got a very critical msg. It is heart breaking to see him with all the lines and the oxygen, but that specific hour was a precious one, in which he felt good. so good that he could made a long phone call. which was meanningful.

    Alysia
    dx 2008


    Here, in this forum, I have found my sweet eternal love, my beautiful Phil.. :
    https://www.wegeners-granulomatosis.com/forum/threads/4238-pberggren-memorial-thread
    "You are my sunshine", he used to sing to me... "you make me happy, when skies are grey" I still answer him.
    Rest in Peace, my brave Batman and take care of your weggies from heaven, until we meet again.

  2. #2
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    We posted at the same time, so I didn't see yours until after I sent mine. This tells more and more about how important these hospital pictures were. Most of your face-to-face relationship took place and developed in meaning within the walls of the hospital. That is part of what is so sad, that you didn't have more time together outside of there. So you had to make the most of the situation, and did. The fact that you were there for Phil in the hospital for all that time meant everything in the world to him, you, and his family, I'm sure, and still does.
    Anne, dx'ed April 2011

  3. #3
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    thank you Anne. I love you very much.
    Alysia
    dx 2008


    Here, in this forum, I have found my sweet eternal love, my beautiful Phil.. :
    https://www.wegeners-granulomatosis.com/forum/threads/4238-pberggren-memorial-thread
    "You are my sunshine", he used to sing to me... "you make me happy, when skies are grey" I still answer him.
    Rest in Peace, my brave Batman and take care of your weggies from heaven, until we meet again.

  4. #4
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    I love you, too!
    Anne, dx'ed April 2011

  5. #5
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    Alysia,
    Thank you for sharing your pictures with us. It is your decision to post anything that you want and you should never feel that you have to please everyone. This is your journey with your loved one, Phil and whatever you choose to share is entirely up to you. The people who messaged you, think that they are helping, but they weren't there you were and you are still living that everyday. I hope your health is doing well and I wish you all the love and understanding from all your friends all over the world.
    Jana


    Do not fear anything, just do it afraid!
    It does not matter how slowly you go, as long as you do not stop!


  6. #6
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    Alysia,
    Thanks again for sharing your photos.
    Both of you really shared some special moments.

  7. #7
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    Alysia.

    XXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXOOOOOOOO OOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOO.

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