I can't wait to hear your updates but at the same time, I don't want to see them
My heart goes out to you and my prayers to Phil.
As I said to you privately, I just wish that there was more that I can do - from Australia
Much love to you both
I can't wait to hear your updates but at the same time, I don't want to see them
My heart goes out to you and my prayers to Phil.
As I said to you privately, I just wish that there was more that I can do - from Australia
Much love to you both
Keep Smiling
Michelle
Live your life in a way that you wouldn't be ashamed to sell the family parrot to the town gossip - WILL ROGERS
Thinking & praying for you both
Thanks for the update heartbreaking as it is
Stay strong
Xxxx
Sent from my iPad using Tapatalk
Thanks for the update Alysia, I hope and pray that Phil will get better. Good luck to both of you.
You two are in my prayers.
~ Bob
Hoping Phil gets better and that you take care of yourself as well!!
I am a strong person, but every now and then I also need someone to take my hand & say everything will be alright....
Were they able to succesfully insert chest tube nr eight? I sure hope so, and hope the saturation will go up again, so Phil won't need all those oxygen and will be able to write a message here.
Good luck Alysia, with your attempt to fly back again, but as more people have said here already: take care of yourself too! Try to get enough rest too!
You both are in my thoughts. Many greetings from the Netherlands.
Living with WG/GPA since june 2010...
thank you for your prayers and support and caring and love.
yesterday was very scary. they insert the chest tube but before, Phil felt so bad, like he is going to die he said after, that the docs saved his life. today I had short talk with him. the left lung is not up yet the docs consulted with his WG doc and they suspect that the wg is active so he will start pred and rtx and antibiotics. I hope all these can help.
please continue to pray. thanks for being with us. I love you.
p.s. I am ok. I just did my labs and they look good. I wish my love to Phil could have heal him, like his love to me is healing me.
Alysia
dx 2008
Here, in this forum, I have found my sweet eternal love, my beautiful Phil.. :
https://www.wegeners-granulomatosis.com/forum/threads/4238-pberggren-memorial-thread
"You are my sunshine", he used to sing to me... "you make me happy, when skies are grey" I still answer him.
Rest in Peace, my brave Batman and take care of your weggies from heaven, until we meet again.
Thanks, Alysia! I'm so glad, even though there are still issues, that Phil is feeling better and more like someone who is going to keep on living! You are right, he is a fighter. I'm also happy that your labs look good. Love to both of you!
Anne, dx'ed April 2011
So happy to hear things are looking up a bit. I'm glad that they finally had wegs specialists check him out and maybe their txs, will bring him back to a more stable state. Please take care of yourself and keep an eye on your bodies messages. Prayers to you both and may everything continue to improve.
Jana
Do not fear anything, just do it afraid!
It does not matter how slowly you go, as long as you do not stop!
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