nosebleeds

[jeriorleans]

Are nosebleeds common with Cytoxan? I have a call in to A.J.'s doctor but he has now had two controlled nose bleeds.

[Sangye]

I've not heard of that as a side effect of ctx.

Nosebleeds are a sign of active Wegs, though, and if they're new for AJ, it may mean the ctx isn't working or something else needs to be adjusted.

[Jack]

Agree with Sangye.
Not a side effect I have heard of but very common as a symptom of active Wegener's.

[Doug]

I agree, too. The Cytoxan brings that (Wegs symptoms) into control. This is where having a WG-familiar specialist in charge of you son's care is imperative.

[andrew]

Yeah I get nosebleeds fairly regularly although they occur much more often when I'm taking Pred.

[Jack]

Seems to be another example of this disease making no sense.
When my disease was active, I had huge problems with nose bleeds often several times a day to the extent that I started to worry about the loss of blood. After it had been brought under control with medication including large quantities of Pred I had no further trouble whatsoever. These days, I just have a bit of a runny nose.

[andrew]

Jack I wouldn't be too concerned. I'm a conundrum wrapped in a riddle wrapped in a mystery.

[Sangye]

Like an eggroll, maybe?

[andrew]

That's it!!! I was going to compare myself to an Onion but an Eggroll is perfect

[firecracker]

My nose bleeds just about everyday. Im sure my constant nose blowing does not help. I tend to blow my nose way to hard. I am seeing a new rheum tomorrow that my ent got me in to that knows about wg unlike the one i was seeing. Oh and the bone scans came back neg for infection and only showed inflammation on the right side of my face. Back to square one yet again.