I love the song, Alysia!
I am trying to get down from 8 mg to 7 and I'm going to have to slow it down… I will take 8 today again because I have a blinding headache and lots of pain… seems more like muscle pain than joint pain, other than my jaw, which hurts when I chew soft strawberries. I'll be making a nice big smoothie soon.
I'm surprised my rheumy, who is pretty experienced with prednisone etc. even if not with GPA, would suggest I go down by 5 mg/week until at 5 mg, then stop cold turkey… Clearly he has never experienced what it's like, and is unfamiliar with adrenal fatigue. Maybe he figures we should rip it off like a bandaid; but if my adrenals are as dopey as I think, that could actually be very dangerous. So I'm kind of making my own tapering schedule, which I'll share with him when I see him next week. Time to go back to the naturopath, too, I think, as they are very good at helping you support your adrenal glands and get them back to optimal function.
I think the response and rate at which we need to taper down is very individual, just like each of our diseases. Proceed with caution! Good luck to everyone who's trying to kick the 'habit'.
Just when the caterpillar thought the world was over, she became a butterfly.
- English proverb.
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