Its been about 5 months now and I have been feeling truly outstanding. I'm not sure what it is, but suspect a combination of 5mg/pred/day (new for me), gabapentin (neruopath pain blocker), and steroid shots in my knees.
I have had good times before, but this is the first time in 4 years that I actually feel almost normal, not just new normal, but back to the way it used to be. I have lots of energy and pretty much zero pain (but I am on tramadol). I'm sleeping well, eating well, and living pretty normal. I have been working on my MG a lot and making plans for more trips (I hope to go to UK for 3 months this fall, but wife wants to go NZ/AU). I sure hope this lasts.
Funny aside.... On my last annual, mandatory VA appt a week ago, the doc counted my drugs and said "hmmmm, 23, we need to cut that down to 5. yeah, no more than 5". I asked him if he had even looked at the diseases I have and he said "you should still be on no more than 5". My faith and confidence in the system went right down a rat hole at that point. Nevertheless, they set me up for an appt with a clinical pharmacists to cut down my drugs. Ha, fat chance! You can talk and I will listen, but nothing changes. Sheeezeee.... I need 9 of those drugs to just stay in a vertical position and keep breathing.
Anyway, I'm feeling great and hope it lasts.... I know it won't, but I can hope.... :-)
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