CellCept questions...

[debhaz22]

Hi,
Just back from JH and the Dr. doesn't like the effects the MTX is having on me, so he's starting me on CellCept. I know nothing about it, I don't even know anyone who is on it and that makes me very nervous. Can anyone fill me in?
Thanks so much,
Deb H.

[Alysia]

Hi Deb,
I don't know anything about cellept, but to make you calm, I remmeber many around using it, and feeling good with it. mtx didnt work for me either.

[annekat]

I seem to remember Sangye being on Cellcept for a time. You might PM her. And she has the same doc you do, as you know.

[crackers]

I've been on cellcept for seven years now and except for a slight hiccup at the start,i was started on too high a dose,i've been fine and it's worked well for me.i'm currently on 2 grams a day.i hope it works as well for you as it has for me.
john.

[debhaz22]

Hi John,
Do you know what dose you started at? The only side effect was hiccups? Are you in remission?
THX

[crackers]

hi Deb
over here in the UK a slight hiccup means a small problem.i started on 3 grams but developed pneumonia because of it.i came of it for a while then restarted on 1 gram which gradually increased to the 2 grams I'm currently on.i haven't had any serious WG episodes for a few years but I've been pred free for the last 5 weeks and I'm beginning to experience a lot of joint pain and extreme lethargy.good luck on cellcept just beware of starting on a high dose.
john

[jmmilliorn]

I couldn't take MTX either. Cellcept worked better for me but had a lot of side effects--posted elsewhere above. RTX is doing the job now without Cellcept so far. I feel better.

[Jaha]

Mike,
I also am treated by Villa-Forte at CC. I'm really hoping that she will soon say that i can cut the cellcept out. I think sometimes i really am confusing to the docs, because I also have COPD and fibromalgia. They tell me I'm an interesting case, I don't know if that is good. I would like to talk with you sometime, if you would like to private message me, please do. It seems we have a lot in common. Take care!