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  1. #21
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    What does the Find a Zebra website suggest as possible diagnoses for her symptoms? For many of us GPA came up first or second when we plugged in all our symptoms. GPA is often diagnosed it seems by excluding everything else that is more likely first and then confirmed by a biopsy of an affected part of the body.
    Knowledge is power! Wisdom is using it to make good decisions!

  2. #22
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    Quote Originally Posted by drz View Post
    What does the Find a Zebra website suggest as possible diagnoses for her symptoms? For many of us GPA came up first or second when we plugged in all our symptoms. GPA is often diagnosed it seems by excluding everything else that is more likely first and then confirmed by a biopsy of an affected part of the body.
    Oh gosh, I'd never heard of that before. I just did it and number one and two is Wegener's

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  3. #23
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    Quote Originally Posted by tjsheldon3 View Post
    Oh gosh, I'd never heard of that before. I just did it and number one and two is Wegener's

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    Ask your doctor what are thinking at this point. Do they agree it might be GPA?
    Knowledge is power! Wisdom is using it to make good decisions!

  4. #24
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    Hi tjsheldon. Thinking of you, wondering what is going on, and how she is...and just FYI, Dr Reiff &'the rheumatology team at Children's Hospital Los Angeles can consult on cases - they have a lot of pediatric wegeners patients, and can review the labs etc if your rheumy is willing to send them(which they should be...) just if you want a second opinion or other minds involved.

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