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Thread: Understanding the cANCA test

  1. #21
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    Quote Originally Posted by greenjeep View Post
    I am doing better. My nephrologist put me on a Cytoxan infusion regimen that has brought my kidney function back close to normal. My old friend fatigue and wrestling wit the mental ramifications of this disease are my main issues today.


    Sent from my iPhone while driving on the freeway.
    Wonderfull that your kidney function is now close to normal. Fatigue and wrestling with mental ramifications... Yeah. I think I know what you mean.
    About eating soup, driving and texting: you sure are a multitasker!
    Living with WG/GPA since june 2010...

  2. #22
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    I do what I can ...


    Sent from my iPhone while driving on the freeway.

  3. #23
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    Quote Originally Posted by MaxD View Post
    Chadwyck,

    Here is an informative presentation that also addresses your question: http://www.stritch.luc.edu/cme/sites...13_hariman.pdf
    The short answer is that while high PR3 levels alone are not a strong indicator for the general population, they can (under specific circumstances, such as when PR3 levels go down under treatment) be an early warning sign for individuals. That's why it is so important to have an expert looking at your numbers (at least as a backup to whoever is treating you).

    By the way, there is a wealth of valuable information on the vasculitisfoundation.org website for GPA, including talks by leading GPA specialists.

    Good luck to you (and to all fellow GPAers)!
    Lot of info in this slide show. It looks like they have a good understanding of how the damage to our body occurs from GPA. The list of researchers on the studies looks like a who's who of good doctors to see for GPA as we will recognize most of the expert names.

    I think every doctor treating us should know the contents of this slide show. If your treating or consulting doctor is one of the authors listed on the studies I think we can safely assume they do.
    Knowledge is power! Wisdom is using it to make good decisions!

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