My ENT is running a scope in my sinuses every visit. I do have great insurance, and at over $500 per office visit when he does the endoscopy, I wouldn't want to pay that out of my own pocket. I am there for every 2 weeks since my flare up in November, and I get a good crust removal at every visit. Now that the sinuses are settling down, we will probably start spacing the appointments out a little more.
With this disease, you need an active doctor, not a passive one. One that is willing to try new things, research alternative options for his patients, admit when he doesn't know something, and most important of all, listen to you and your daughter when you have ideas/suggestions--even if they come from an internet site of other Wegener's patients!!! Mine listens intently when I have ideas, suggestions, etc. It is nice to hear him dictate some of those ideas back to my chart. When I hear him do that, I know that I'm doing something right or had a good suggestion,and he wants to document it for himself in his notes.
In my opinion, if you have ANY doubts or negativity about your ENT, it is time to find a different one. There are so many good doctors out there that whenever you are not happy, you should be looking for one where you can develop a long term relationship. When I got out of my sinus surgery two years ago, my ENT doc told my wife, "Your husband and I are going to become good friends over the next couple years..." That's what it should feel like, and it does with my ENT. He's awesome!
MikeG-2012
"You never know how strong you are until being strong is the only choice you have"
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