Can anybody that has had and ANCA test describe in detail what is done to you e.g. is it a simple taking of blood / how long is test / how long for results / what numbers confirm GPA /
Many thanks
Stephen
Can anybody that has had and ANCA test describe in detail what is done to you e.g. is it a simple taking of blood / how long is test / how long for results / what numbers confirm GPA /
Many thanks
Stephen
It is a simple blood test, result times will vary, I think mine was week. I had only one and it was after treatment and Doc was looking at the possibility of remission, which was attained. From what I have learned on this forum, the ANCA numbers are interesting however not enough for a diagnosis, a biopsy is the best bet. Mine was done to my lungs. What is going on with treatment and are you seeing a Rheumatologist who is familiar with WG/ GPA?
Dale
Dx Aug, 2009 Remission June 2010 until 8/1/2014
I think that in each country the numbers are different and are on another scale.
generally, if it is positive, it is indication for wg-activity. the more high - the more wg-activity.
Alysia
dx 2008
Here, in this forum, I have found my sweet eternal love, my beautiful Phil.. :
https://www.wegeners-granulomatosis.com/forum/threads/4238-pberggren-memorial-thread
"You are my sunshine", he used to sing to me... "you make me happy, when skies are grey" I still answer him.
Rest in Peace, my brave Batman and take care of your weggies from heaven, until we meet again.
Very high positive scores are suggestive of GPA but not definitive. Some people are diagnosed without having high ANCA scores.
Mine are routinely done at Mayo clinic as part of their longitudinal follow up research project along with several other lab tests done regular blood draws and urine samples. Because everything is done twice they do take extra blood and send half to other clinic that is center for all the clinics involved in the study. I think there are six clinics involved in this GPA study. If I need one at another clinic other than the U of MN they have to send the blood sample away to get ANCA results since not all clinics are set up to do it.
Knowledge is power! Wisdom is using it to make good decisions!
Maui Derm | Top 10 Topics in Vasculitis from a Rheumatologist?s Perspective
no. 6 & 7 are talking about anca.
Alysia
dx 2008
Here, in this forum, I have found my sweet eternal love, my beautiful Phil.. :
https://www.wegeners-granulomatosis.com/forum/threads/4238-pberggren-memorial-thread
"You are my sunshine", he used to sing to me... "you make me happy, when skies are grey" I still answer him.
Rest in Peace, my brave Batman and take care of your weggies from heaven, until we meet again.
My ANCA first test read 160, it took 4 weeks to get down to 40, and another 3 months to get down to 0-4. Your CRP is more important as this tells you disease activity, lower numbers are good, I think I was about 60 when really ill, now it is usually 0.
Regards .......Woz
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