Welcome Debbie!!!
When I was diagnosed, I was on daily cyclo pills plus IV daily while I was in Intensive Care.
After that, it was daily cyclo pills and monthly IV cyclo/metotrexate. This went for approximately 12 months. At that point I was switched to Imuran which I remain on and have had for almost four years.
Everyone is different though so my experience (or anyone else's for that matter) may not mirror yours. It all depends on bloodwork and your response to treatment.
Remember (if you haven't been told), drink lots of water when you're on the Cyclo pills. You need to ensure your system is flushed as the residue from the pills can stay in your bladder and cause problems. Problems are uncommon but best to be safe :-)
What has your reaction been to the cyclo? I lost some hair on my head and on my calves for some reason. Weird huh.
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Diagnosed March 2003.
Currently but not permanetly residing in Canberra, Australia.
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