Sinus Question / seems like small flare

[Psyborg]

Sorry if this is gross . I've up to this point had little to no sinus involvement beyond a perpetually runny nose. Recently I've had this weird thing. My sinuses feel clear, but I will randomly get thick jelly-like mucus from them. Completely clear every time, but the consistency is what seems weird and the fact they come out of a nose that doesn't feel clogged.

I was wondering if anyone had similar, or if this was like an early step towards nose issues.

I did call my doc and she wants another RTX infusion but that was based on pain I've been having mostly.

[Dirty Don]

Hi Bob, got the exact same thing going on, has been since I was dxd for the most part. Docs aren't worried unless there's blood, of course. People ask me if I have a cold, NOT! I don't bother to explain anymore. And I spend a bit of time each morning 'clearing' it out altho that doesn't seem to do much good as the day passes. Also seems to react to the humidity a lot too...oh, we don't have humidity here, but my nose knows no different! LOL! It doesn't seem to be a 'destructive mucus' so it's become a part of my 'normal' now. Best to you!

[pberggren1]

I did have something like that Bob but can't remember when. I don't think it was during a flare though.

[Psyborg]

I talked with DR Villa Forte last night, and she said the other symptoms indicated a flare. I was curious on the sinus thing because it was new. I've had some runny-nose issues all along but the globules (for lack of a better term ;p) is new.

Had my PFT today and I'm down another 2% since 6 months ago so that kind of goes along with the flare thing too. Looks like another RTX adventure for me.

[Pete]

Hey Bob,

Do you use a sinus rinse on a regular basis? I had been having some bloody crusting and thick mucous. Dr Villa Forte suggested I use a neti-pot daily and also Rxed the Clinic's non-antibiotic nasal ointment. I've had good results so far.

How you doin' otherwise?

[mishb]

Sorry if this is gross . I've up to this point had little to no sinus involvement beyond a perpetually runny nose. Recently I've had this weird thing. My sinuses feel clear, but I will randomly get thick jelly-like mucus from them. Completely clear every time, but the consistency is what seems weird and the fact they come out of a nose that doesn't feel clogged.

I was wondering if anyone had similar, or if this was like an early step towards nose issues.

I did call my doc and she wants another RTX infusion but that was based on pain I've been having mostly.

That jelly like stuff was the first thing I was having, way before the sinus infections started and way before the crusting started.
It was nearly the beginning of everything for me - apart from the joint and muscle pains.

I agree that it's a flare

[Psyborg]

Hey Bob,

Do you use a sinus rinse on a regular basis? I had been having some bloody crusting and thick mucous. Dr Villa Forte suggested I use a neti-pot daily and also Rxed the Clinic's non-antibiotic nasal ointment. I've had good results so far.

How you doin' otherwise?

I don't do a rinse because I've been lucky and not had much sinus involvement.

I'm doing alright, but could definitely be better. I think I've been in denial about a month on the flare. Finally decided to call when I was waking up every two hours with pain in my sleep (side I sleep on feels like it bruised/on fire almost). My labs have been great so I figured it was the weather and maybe mishandling my Pred taper, but it never went away.

[Psyborg]

That jelly like stuff was the first thing I was having, way before the sinus infections started and way before the crusting started.
It was nearly the beginning of everything for me - apart from the joint and muscle pains.

I agree that it's a flare

That was what I was thinking...that the mucus was some sort of attempt by my body to try to fight something off that isn't there. Just seemed like maybe it was a precursor to real issues maybe. It always goes away when things are under control.

[chrisTIn@]

That was what I was thinking...that the mucus was some sort of attempt by my body to try to fight something off that isn't there. Just seemed like maybe it was a precursor to real issues maybe. It always goes away when things are under control.

I 'm familiar with the runny nose as well as the thick mucus. I my case the mucus is kind of 'white' and thick, not totally clear.
When the disease is under control, these symptoms go away.
So I agree with you on this. 'Sort of attempt of the body to fight things off'. I would only add the following: 'To fight something off that is not yet there'.
I Always have to do something. Medication, extra rinsing or whatever will work.
Rinsing my nose Always is good to prevend further escalation of symptoms, but sometimes I have to talk it over with my doc and take medication.

[Alysia]

Hi Bob,
for years I had "pruductions" from the nose, big crusting and bleeding ones.
since the RTX started to work, they almost disapear, but I still have stuff from the nose from time to time, that is similar to what you are describing.
maybe this is what is going out after the influence of RTX ?