Do "they" come back again??
Do "they" come back again??
Hi Deb,
what do you mean by "come back again" ? as long as you are not getting the right treatment for wg, and it is still active, then all the time there is more crusting, bleeding, boogers, etc you need to get treatment.
about the c-anca: I investigated it: c-anca is positive usually ONLY on WG and crohn disease. pr3 should come along with it. maybe the labs are not doing it correctly.
Alysia
dx 2008
Here, in this forum, I have found my sweet eternal love, my beautiful Phil.. :
https://www.wegeners-granulomatosis.com/forum/threads/4238-pberggren-memorial-thread
"You are my sunshine", he used to sing to me... "you make me happy, when skies are grey" I still answer him.
Rest in Peace, my brave Batman and take care of your weggies from heaven, until we meet again.
OMgosh! I read this thread last night and I've got to say, I laughed till I thought I might wet myself. Yep, it may be juvenile, but it was funny and I couldn't help myself.
While I was sick and before diagnosis I too would have the most awful stuff come out of my nose. Once I started the prednisone and cyclophosphamide , it seemed to slow down. Then about three weeks after starting treatment? I was snarffing these whitish gray, almost leathery textured masses.
Just glad to know I was normal after reading everyone else post.
Oh man, I forgot about this thread. I can't believe it keeps going on. I was on sooooooooooooooo many drugs the whole first couple of months I was posting here lol. Now much more sober me looks at these and can't believe he wrote and posted so much. I regret nothing
"It takes less muscles to smile than it does to frown!"
-A quote to a doctor from me, in the hospital, while giving him a Bells Palsy smile (I was on some gooooood drugs at the time)
one of the best threads ever
Alysia
dx 2008
Here, in this forum, I have found my sweet eternal love, my beautiful Phil.. :
https://www.wegeners-granulomatosis.com/forum/threads/4238-pberggren-memorial-thread
"You are my sunshine", he used to sing to me... "you make me happy, when skies are grey" I still answer him.
Rest in Peace, my brave Batman and take care of your weggies from heaven, until we meet again.
Alysia
dx 2008
Here, in this forum, I have found my sweet eternal love, my beautiful Phil.. :
https://www.wegeners-granulomatosis.com/forum/threads/4238-pberggren-memorial-thread
"You are my sunshine", he used to sing to me... "you make me happy, when skies are grey" I still answer him.
Rest in Peace, my brave Batman and take care of your weggies from heaven, until we meet again.
Alysia
dx 2008
Here, in this forum, I have found my sweet eternal love, my beautiful Phil.. :
https://www.wegeners-granulomatosis.com/forum/threads/4238-pberggren-memorial-thread
"You are my sunshine", he used to sing to me... "you make me happy, when skies are grey" I still answer him.
Rest in Peace, my brave Batman and take care of your weggies from heaven, until we meet again.
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