You do raise a good point though as to why ENTs never consider GPA for our symptoms. Why don't they ask about joint pain and fatigue to rule it out as possible diagnosis
My original ENT knew I had WG, saw a bit of it in my sinus area, but throughout her entire treatment of me (I also had the deviated septum thingy) she never appeared nor really talked about knowing what to do about WG within her realm/protocol of things to see and advise on. Of course, this is hindsight now as I was scared at that time...but from chat on here, some experiential, and putting other's experiences in...it seems ENTs can't do a lot about WG except to clean up damage, so it reasons they wouldn't be on the lookout to 'fix' WG at first...it's an awareness problem, again.
Knowing how to think empowers you far beyond those who only know what to think. -NdT
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