Wegener's Granulomatosis Studies

[pberggren1]

I have come across some interesting studies and thought I should share.




Wegeners in a father and son

Journal of rheumatology, Clinical and Experimental Rheumatology, Submission on line

Familial granulomatosis with polyangiitis: three cases of this rare disorder in one Indoasian family carrying an identical HLA DPB1 allele -- Tanna et al. 2012 -- BMJ Case Reports

I have some others as well but can't seem to find them right now.

[Alysia]

Hi Phil,
thanks for sharing
poor families
it is scary to think that our children are in risk of developing WG
I think that in my case there can be some genetic basis because my parents are relatives....

[pberggren1]

Alysia, your parents are relatives? In what way?

[Alysia]

Alysia, your parents are relatives? In what way?

they have same grandfather 5 generations back.

[pberggren1]

That makes them 4th cousins. That is fine.

[Alysia]

my syster has Icthyosis which is genetic skin disorder.

[Barbara N]

I have come across some interesting studies and thought I should share.




Wegeners in a father and son

Journal of rheumatology, Clinical and Experimental Rheumatology, Submission on line

Familial granulomatosis with polyangiitis: three cases of this rare disorder in one Indoasian family carrying an identical HLA DPB1 allele -- Tanna et al. 2012 -- BMJ Case Reports

I have some others as well but can't seem to find them right now.

Good researching Phil, keep it up and we my resolve the mystery to WG

[Linda22]

Is Wegner's as rare as what the medical profession and the researchers say it is or is it becoming a little too common? The specialist that treated my son also told me that more than likely it was genetic but could not tell me exactely

[Dirty Don]

WG is rare in comparison to cancers, etc. I've heard all kinds of stats, but most seem to be around 1 in 30,000. Unless, of course, you live near Phil...he attracts Weggies! The amount of 'newcomers' on here indicates a rise in awareness for sure, maybe in actual illness too. But, awareness, due to some on here and some national exposure, of AIs in general and WG specifically, has gone up, but it's nowhere near the heights of financial and research support of many other more common diseases. Genetics are brandished around cuz no one really has an exact idea of where WG comes from...so blame it on the family!!! LOL!

[Barry Forshaw]

According to the National Health Service website around 500 people each year are diagnosed with Wegener’s in the UK. It is estimated to affect 3 out of every 100,000 people globally. According to my rusty maths that means over 200,000 people are suffering with Wegener’s right now.