Stenosis symptoms?

[whatthewhat]

Hi all,
I apologize if this is addressed somewhere else...
I am wondering if those of you with subglottic, or tracheal, stenosis could tell me how quickly you think it developed in you & what your symptoms were.

My daughter is having trouble breathing, and has a weird cough, although according to both the pediatrician & the ENT's PA her lungs sound clear. We have referrals to the ENT proper & a pulmonary specialist. I grew up with "severe chronic asthma" and her breathing difficulty is not anything I'm familiar with. However the ENT's PA said stenosis would have been diagnosed during her March (initial diagnosis) bronchioscopy.
thanks,
wtw

[Psyborg]

The stenosis definitely gives you a weird cough. As I understand it the weezing from Ashtmas is on inhalation, that from stenosis tends to be on exhalation. Mine is in the Trachea and Bronchial tubes. Have her take a very deep breath and breath out very hard. If she has a weeziness when breathing out I'd say you are probably on the right track.

[whatthewhat]

Thanks, Bob. I had her breathe in as deeply as she can, and there is no wheeze in exhalation. The inhalation (deep) is very uncomfortable for her, and triggers the weird cough (a short, dry cough.) She has no other allergy-type symptoms either. This is about the 10th day of it, and she is exhausted.

[drz]

Thanks, Bob. I had her breathe in as deeply as she can, and there is no wheeze in exhalation. The inhalation (deep) is very uncomfortable for her, and triggers the weird cough (a short, dry cough.) She has no other allergy-type symptoms either. This is about the 10th day of it, and she is exhausted.

Trouble breathing is very uncomfortable and exhausting.

What are doctors recommending to assess and /or treat the problem?

[whatthewhat]

Hm. Well, I called her very good rheumy team, and they said start with the Pediatrician. This complicates things - we just moved 5 hours away from where we used to live (rheumy team will be the same but all other docs will be new.) Pediatrician was great, said a nebulizer couldn't hurt while we kept on looking for a diagnosis - and it has in fact helped. The next step was to an ENT - she saw the PA, who I am not convinced is a Weg's expert - the PA is the one who said that stenosis would have been noticed during the March bronchioscopy and that it doesn't develop over a 10 week period. We have a referral to the ENT doc proper. Plus the PA has prescribed a nasal spray & an antibacterial nasal cream (to use instead of Ayr) and took a nasal culture, because her left nostril still looks (lively, is the word I'll use because I'm no doctor!) from her week of bloody noses a month ago. Now we have a referral to a pulmonary specialist

[whatthewhat]

Also, her bff is coming for a visit, which to a 15 year-old may do as much good as seeing an MD!