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Thread: Maintenance Meds

  1. #11
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    Quote Originally Posted by HopeinTN View Post
    Nope, I thought the the Dr. at Johns Hopkins would talk my doctors at Vandy into taking me off the CTX back months ago but nope. They all agreed that mine was a tough case and I wasn't in remission just yet.

    Yes, I do miss Al and the Hurricane comments. He was such a good egg!

    Exactly Annekat. This group is awesome and who better to ask than my fellow weggies that have been there before me?
    Hurricane comments??? I remember Al but not sure what this refers to?

  2. #12
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    My name being Katrina and the association with Hurricane Katrina.
    "Never go to a doctor whose office plants have died." - Erma Bombeck

  3. #13
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    Quote Originally Posted by HopeinTN View Post
    My name being Katrina and the association with Hurricane Katrina.
    DUH??? I don't drink coffee but must need something now.

  4. #14
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    I take Azathioprine, 100 mg a day. I've been on it for 3 years and it seems to work fine. I had slight hair loss in the begining but nothing to worry about. My white blood cell count is consistently low. The doctors tell me it's because of the Azathiprine. I get upset stomach often, and have to watch cuts as you are much more susceptible to infection. otherwise I feel fine and haven't had any bad reactions to it. I'm happy with it.

  5. #15
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    I couldnt bear Imuran. 3 weeks after I started it, I vommited and had diarhea an hour after taking it. it felt like being poisonned. so my doc swithched to MTX.
    Alysia
    dx 2008


    Here, in this forum, I have found my sweet eternal love, my beautiful Phil.. :
    https://www.wegeners-granulomatosis.com/forum/threads/4238-pberggren-memorial-thread
    "You are my sunshine", he used to sing to me... "you make me happy, when skies are grey" I still answer him.
    Rest in Peace, my brave Batman and take care of your weggies from heaven, until we meet again.

  6. #16
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    Drz- It's the drugs we stay on so no worries. LOL!

    It's nice to know how everyone has reacted to the meds. Thanks for all the info.
    "Never go to a doctor whose office plants have died." - Erma Bombeck

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