Hi Carrie,
Glad you found us, sad you had to. I'm confident that your son will lead a near normal life. He'll probably have to make some accommodations depending on what organs were affected and to what degree, but he should be able to do pretty much what he wants in life.
As I recall, Flat Rock is between Detroit and Toledo. That puts you within fairly easy driving distance to Cleveland Clinic where they have several experienced wegs docs. I go there and see Dr. Alexandra Villa Forte. Some of the other forum subscribers see her as well, and the consensus of opinion is that she provides very good care.
Pete
dx 1/11
"Every day is a good day. Some are better than others." - unknown
"Take your meds as directed and live your life as fully as you can." - Michael Chacey, MD
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