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Thread: I'm back

  1. #1
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    Default I'm back

    I am back from several weeks in the twilight zone. _The Ketemine was great and I still have no pain of any kind. For about 2 weeks after the treatment I was still very out of touch with where I was and what I was doing. I couldn't remember dates or names and felt a bit clumsy. It wasn't horrible but I felt a bit helpless. My eye check up went really well, I have been doing the exercises just right and keeping them lubricated.The doctor that is doing the draining of the tear sacks seems to be doing a fantastic job because they told me that normally after having it done so many times infection sets in and I have none. They haven't seen this thick liquid that comes out of my eyes before. We have taken lots of samples and I know last time ,lots of biopsies. Sometimes the liquid comes in great quantity sometimes just a little but if I don't keep control of it It can get out of hand and destroy my cornea again and seal my lids shut, then I am in big trouble. We had a few other minor things but nothing to worry much about.My memory is returning so if I sent you some stupid message, keep it or throw it away accordingly. In one more week I should be back to 100% me. We did discover some of intestinal hernias only two worth bothering with but they don't want to operate so they say don't lift much weight and relax. have one more treatment of Ketamine in 6 months then I should be finished or at least my goal is to be finished. It is great to be back and great to be with all of you again. I have a lot of reading to catch up on. .Maybe we need a weekly catch-up page so you can keep trak of what everyone has been doing if you have had to be away for a while. I would do it but I am new and don't know you all very well and of course my incompetence on the computer. My horse sends a giant HELLO and I send ANIMO to everyone. I have really missed you all. Barbara
    My blog: Animo

  2. #2
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    Hey Barbara,

    Great to see you back.
    Your eye situation is amazing......and crazy......and ikky.......and gosh, what does one say .......WOW.

    You have amazing strength and with the hernia's, you have now been given doctor's permission to RELAX.

    Take it easy.......and if you can't do that .......Happy Riding
    Keep Smiling
    Michelle


    Live your life in a way that you wouldn't be ashamed to sell the family parrot to the town gossip - WILL ROGERS

  3. #3
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    Hi Barbara,
    welcome back, we missed you

    it seems that you have good docs, who know what to do and who cares about you.
    I hope you are on the road to feeling well.
    Alysia
    dx 2008


    Here, in this forum, I have found my sweet eternal love, my beautiful Phil.. :
    https://www.wegeners-granulomatosis.com/forum/threads/4238-pberggren-memorial-thread
    "You are my sunshine", he used to sing to me... "you make me happy, when skies are grey" I still answer him.
    Rest in Peace, my brave Batman and take care of your weggies from heaven, until we meet again.

  4. #4
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    Barbara, you are a profile in courage and strength, an example to us all. May you now enjoy many happy hours of relaxing and enjoying life with your family, and if you are up to it, riding your magnificent horse! I am glad you have that animal in your life and derive so much pleasure and therapy from riding.
    Anne, dx'ed April 2011

  5. #5
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    Default Friesian therapy

    Quote Originally Posted by annekat View Post
    Barbara, you are a profile in courage and strength, an example to us all. May you now enjoy many happy hours of relaxing and enjoying life with your family, and if you are up to it, riding your magnificent horse! I am glad you have that animal in your life and derive so much pleasure and therapy from riding.
    Come try it some time, you will never want to get off. They say the outside of a horse is good for the inside of man.
    My blog: Animo

  6. #6
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    Quote Originally Posted by Barbara N View Post
    Come try it some time, you will never want to get off. They say the outside of a horse is good for the inside of man.
    Looks inside...deep inside...naw, I prefer Porsches...and, er, my coffee!
    Knowing how to think empowers you far beyond those who only know what to think. -NdT


  7. #7
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    Welcome back
    ~ Bob

  8. #8
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    I have ridden, Barbara, in my younger years, at summer camp and such, but mostly on "old nags" and for short periods of time. I did get a taste of the exhilaration now and then. I wasn't able to do it on a continuous basis like you are, enough to get good at it and really comfortable and tuned in with the horses. Who knows, I MIGHT try it again some day!
    Anne, dx'ed April 2011

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