Hi! My name is Hope. I am on a high dose of Imuran and Plaquenil, being treated for a generalized but severe autoimmune disease. My ENT is requesting that my rheumatologist treat me for Wegner's because of this scabby yucky stuff going for the bridge of the nose. My septum was eaten years ago. I also have tracheal stenoses and the specialists have not decided if it is cause by damage to the vertebrae or the immune illness or both.
i am starting to pass out again. One neurologist years ago said it was vertigo. I will be somewhere, and suddenly feel very dopey, try to stay awake and then I'm out for minutes or longer, sometimes repeatedly. Sometimes I don't pass out and the sense of being drugged up lingers for a while and later I am fine.. It rarely lasts for hours like it did before treatment. The motion of the carmaker it worse, and when I get the warning signs, I find a place to pull over and pass out for a while. I limit my driving to 20-30 minute distances, which is basically to our small town and back. My husband drives us to longer distances and for a while I am unsteady until I'm out of the car for a little while.
I've had all kinds of tests for my ears plus EEGs over the years and they are basically normal.
is any of this familiar to anyone? If so, some suggestions would be helpfull.
My own opinion is that it may be caused by vasculitis in the brain because of my history of headaches and seizures when lifting anything heavy (I have a supposedly inactive small aneurysm) and/or some type of inner ear disorder.
thanks.
Hope
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