eyes involvement ?

[mishb]

Yes, eyes for me too........my vampire eyes, I call them.

My GP said Uveitis but the rhuemy said scleritis.
It cleared up with steroid eye drops and now occurs ocassionally but clears up again by the next day.

Alysia, you definately need to see an eye specialist familiar with Autoimmune diseases.
Also, my GP recommended to take a photo of them, when they are at their worst

[Alysia]

Hi,
thanks for the replies.
I didnt find such an eye doc here.
my WG doc told me what to ask him to check.
what are the other symptoms to look for ?
and I hope the RTX is starting to work, so it will help my eyes too....
for few days i have less "stuff" from my nose

[annekat]

I had eye redness early on with WG. I could clear it up with Bausch and Lomb eye allergy drops, available OTC, not steroidal, I don't think. But I'd wake up with it every morning. My whole eye area was swollen and irritated during that time. Once I got on treatment with CTX and pred, it cleared up little by little. There was never a diagnosis, nor did I go to an eye doctor, and I think for most of you, it should be more thoroughly investigated than mine was. But just saying that it did clear up along with my other symptoms that improved with treatment.

[pberggren1]

Speaking of eyes I got another shot of Avistin in my right eye. The doc says the Non-Ischemic Central Retinal Vein Occlusion is starting to come back.

[mishb]

Speaking of eyes I got another shot of Avistin in my right eye. The doc says the Non-Ischemic Central Retinal Vein Occlusion is starting to come back.

Ouch

I still don't know how you can take that one

[pberggren1]

I'm Batman......did you forget?

[Jaha]

Alysia,

I have had eye involvement, red eyes,swelling and blurred vision. I had to have cataract surgery on rt eye in Feb, because of being on preds for so long. I did go to an eye surgeon/specialist but now I'm having problems with that same eye and the lens is not healing properly. I suggest that you go to a dr who knows about vasculitis, I thought this one did but I'm beginning to wonder. I have had pain in the rt eye and both eyelids turned black and blue. I have been back several times and she says everything looks great. I go back to her tomorrow, we'll see what happens next. Good luck to you and please find a good vasculitis eye specialist.

[Barbara N]

My eye problems seem to be different from most. I have dry eye syndrome so I use liquid tears all day, my membrane around the back of my eyes and under my eye lids gets destroyed. I must have seen 20 ophthalmologists before I found one the knew what he was doing. My body starts to produce a thick clear sticky liquid that come out of my eyes, ears, nose. I clear it all of the time with saline solution, if I don't watch it all of the time it will seal my eyes shut and then everything sticks to everything and I lose my sight. This is the fourth time it has happened but knowing what I know now I slow the whole procedure down so that they can replace the membrane before it does too much damage. I am just about to do this in the next few weeks but first they will check what else needs doing, I just got a hernia and need my ears redoing. they are great here because they will all try and operate in the same operating room so I only have to be put to sleep one. I am a very high risk patient. I'll keep you up dated. Barbara

[Kodiak]

My husband has eye involvement. The WG is affecting his optic nerve, inflammation of the surrounding optic nerve sheath in the brain. His eyes do not look red, cannot see anything happening to the eyeball itself. Has anyone else ever had these symptoms? Vision loss, double vision? He has had two RTX infusions with no effect yet. Infusions about two weeks ago.

[maria garcia]

My daughter first and only symptom so far has been to the eyes. She had red eyes diagnosed as episcleritis would not get better with eye drops after six months and four eye doctors to figure out why it wasn't going away finally an auto immune eye specialist did a biopsy and was diagnosed. Since she has been on MTX she is on medicated remission and hoping to get off them meds one day.