Dizzy

**jola57** · 06-16-2009, 05:40 PM

The meds are probably what causes the dizzy spells, hypokalemia sounds right if you are sweating a lot, Sangye is right, you should be on supplements. Doc's will treat once you are so far gone that they have to get you back on track but will not advise you or give you anything to prevent an episode like yours

. Well one other option is to put on rabbit ears and hop like a roo, see if that helps

Doug · 06-17-2009, 03:09 AM

Originally Posted by jola57

The meds are probably what causes the dizzy spells, hypokalemia sounds right if you are sweating a lot, Sangye is right, you should be on supplements. Doc's will treat once you are so far gone that they have to get you back on track but will not advise you or give you anything to prevent an episode like yours

. Well one other option is to put on rabbit ears and hop like a roo, see if that helps

Not a good idea for someone suffering hypokalemia: might fall on his or her hippo arse! Just saying....

**Dumpy** · 06-17-2009, 02:09 PM

Went to the cardiologist yesterday and he looked at my nuclear stress test and told me that it appears that I have a left bundle block which would cause my heart to sort of misfire. It is one the readings that he doesn't have 100% confidence in and told me that he would like to do a heart cath to make sure. So in about 10 days I am going in as an outpatience. At this point I would like to have the piece of mind that it isn't my heart either and if that comes in negative I plan on seeking out the Weg Specialist.

**jola57** · 06-17-2009, 05:07 PM

good luck, don't stress too much this is just part of the bundle WG gifts us with.

Doug · 06-17-2009, 05:41 PM

Dumpy, best of luck in the coming days. Waiting to learn results of test already done is nerve-racking enough, and it's only worse waiting, in your case 10 days more, a long time for the tests to be done in the first place. I'm with Jolanta. Work on keeping your stress level down. We're with you!
Let us know how it's going until the test results are back. We recently had an incident when someone (Whose name shall not be spoken! But we all know who she is! Ha!) had a trach removed and we waited for several days to hear about it. It was agonizing even though we knew it would be good news.

**coffeelover** · 06-18-2009, 12:45 AM

OK Doug! I get it.......keep everyone informed.
So yesterday I went to my rheumy and she says all my numbers are looking good, my BP was great (128/60) I have never been as low as 60, so I thought maybe I was dead! ha!
She also is tapering my pred every two weeks a few mg to get me down to 10 mgs. That is really exciting to me! No trach and lowered pred doses, what more could a WEG girl ask for?
I know I will remain on the chemo drugs and some pred for quite a wile yet and that is OK.
Dumpy, I am hoping that they can pinpoint the cause and take care of the problems you are experiencing. I am hoping that my recent good news is catchy and you too will have solutions.
Lisa

Doug · 06-18-2009, 02:08 AM

Speaking of low BP, one day at work a couple of years ago, I didn't feel very energetic, and I was a bit lightheaded. I asked the plant nurse to check my blood pressure: 72/45! Anyway, that's my own personal low, speaking of "How's that person still walking!" She or someone drove me home, made me get to rest. My boss wouldn't let me come back to work until I saw my GP and resolved the issue of low blood pressure. He took me off of BP medications I was put on when I had high blood pressure as a result of taking Prednisone. Lesson there, just because you hit remission,don't forget to review your non-weggies prescriptions with your doctors to see what might be unnecessary post-WG inception or flare!

Yes, Dumpy, we are getting a bit particular about hearing good news, so, again, wishing you well and hoping you get good news!

**coffeelover** · 06-18-2009, 02:10 AM

Originally Posted by Doug

Speaking of low BP, one day at work a couple of years ago, I didn't feel very energetic, and I was a bit lightheaded. I asked the plant nurse to check my blood pressure: 72/45! She checked again, verified it was indeed that low. Anyway, that's my own personal low, speaking of "How's that person still walking!" She or someone drove me home, made me get to rest. My boss wouldn't let me come back to work until I say my GP and resolve the issue os low blood pressure. He took me off of BP medications I was put on when I had high blood pressure during my Prednisone days. Lesson there, just because you hit remission, ,don't forget to revied your non-weggies prescriptions with your doctors to see what might be unnecessary post-WG inception or flare!

Thanks Doug. Good advice. I would not have thought of that
Lisa