Quote Originally Posted by mishb View Post
Yes Stormi, Phil certainly is one of the ones on here with a wealth of WG knowledge and is always happy to help (along with many others).

Please don't give him another nickname ........we couldn't stand it

I found myself asking three different specialists (the first time I saw them) - what do they think would be the cause of my WG and what do they think my treatment plan should be. They could never fully answer the first question, one even went as far as saying ..... lets work it out together and we will both be rich.

Good luck on Wednesday
I think you should start with a nice general question as to how they see your GPA. What your history and lab works suggests for what is best treatment for you and what is their best guess on how your treatment will go for you? This involves what drugs they will try and their guess as to how long for each. If you are working with an expert this is an easy question for them. But remember it is only a guess since no one knows how your body will react to drugs or the disease. My treating doctors had consulted with Falk as he is most highly regarded for kidney damage caused by GPA and the expert you need may vary according to areas attacked by GPA.

Welcome and best wishes for successful treatment and quick remission.