Hi Stormi,
Welcome to our forum. I hope you get the encouragement and information you need here.
Some of the questions you may want to ask include drug side effects to be aware of and what to do if they appear, what's the best way to contact your doctor in both crisis and non-crisis situations ( this disease can present some odd symptoms - I once had persistent hiccups for a couple of days during a flare), symptoms of a flare and what to do. If your doc is not a wegs/Vasculitis specialist, ask who he consults with regarding treatment and also about the number of weggies he treats. Phil has already given you the names of wegs specialists in your area. I urge you to see one soon (if you haven't already) and don't be too concerned about a doc's feelings.
You will probably have periodic blood tests and urinalyses. Ask to be given the results and explanations of what they mean. My doctors post my lab results on line via their hospitals' MyChart facilities. I also get CDs of CT scans, bone density tests, etc. These are important to have if you're in a situation where your wegs doc is in a different hospital than where the tests are done. My wegs doc is at Cleveland Clinic, but most of my labs are done at my family doc's office at Ohio State near my home. (Cleveland is 2.5 hours from home and I have labs done monthly in Columbus now.)
Hope this is helpful.
Pete
dx 1/11
"Every day is a good day. Some are better than others." - unknown
"Take your meds as directed and live your life as fully as you can." - Michael Chacey, MD
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