I saw Dr Seo this week for a routine visit. After this round of rtx, it took me a whopping 9 weeks to bounce back, while it normally takes only 2 weeks. Also, it only seems to work for about 6-7 months, leaving me in increasingly awful shape as I try to make it to one year in-between treatments. (I don't have any other drug options and we've been trying to limit my exposure to rtx)

Dr Seo changed the plan to do 1 rtx infusion every 4 months. He said a doc (John Niles at Boston Univ?) has been doing that with some patients and having success. He said the 4-month timing is completely arbitrary but it does work for some. We both felt it's worth trying since the 4 infusions knock me down so badly and it's a long year in-between. Maybe the Wegs dog will agree to sleep if he gets a short lullaby every 4 months?

First one is in October. I'm not looking forward to getting rtx again so soon, but I can bounce back from just one infusion pretty quickly.